Ségolène Aymé

 
  CV

P7 Ségolène Aymé is a medical geneticist, emeritus director of research at the French Institute of Health and Medical Research (INSERM). She was the founder of Orphanet in 1997 and its executive manager from 1997 up to 2011. Orphanet is the webportal dedicated to rare diseases and orphan drugs which is currently funded by the French Ministry of Health, the INSERM and the European Commission as a Joint Action (DG Public Health). She chairs the European Union Committee of Experts on Rare Diseases (EUCERD), and the WHO Topical Advisory Group for Rare Diseases. She serves as editor-in-chief of the Orphanet Journal of Rare Diseases (www.ojrd.com). She is the coordinator of the FP7 “Support IRDiRC” project.

• Medical Geneticist and Epidemiologist

• Coordinator of the FP7 "Support IRDiRC" project

• Coordinator of the "Orphanet Europe" Joint Action


  Email segolene.aymeinsermfr
  Address INSERM SC11
Plateforme Maladies Rares
96 rue Didot
75014 Paris
France
  Telephone +33 1 56 53 8137
  Fax +33 1 56 53 8138
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