European Commission survey on cross border genetic testing of rare diseases in the European Union

URGENT- We would still like to receive more responses from both laboratories and clinics, and we are asking for your participation. See further to find links to both surveys, which will be open until January 31st.

  

Dear recipient,

 

During the past weeks, you may have received an e-mail announcing that the European Commission survey on cross border genetic testing of rare diseases in the European Union was launched. The survey is targeted to molecular genetic testing laboratories and medical genetic clinics in the Member States of the Union. EuroGentest has been involved in planning and piloting it.

We would like to thank all the respondents for their contribution, and for the time being, we have received a good number of responses from the molecular genetic testing laboratories, but the participation of medical genetic clinics has been poor. We would still like to receive more responses from both laboratories and clinics, and we are asking for your participation. Below you can find links to both surveys, which will be open until January 31st

The survey for laboratories:

 https://www.webropolsurveys.com/S/25C1624FFA693349.par

The survey for clinics:

 https://www.webropolsurveys.com/S/9F923A31F4AE3BB6.par

 

Sincerely,

 

Pia Pohjola, Ph.D, postdoctoral researcher

University of Turku
Institute of Biomedicine
Department of Medical Biochemistry and Genetics
Kiinamyllynkatu 10
20520 Turku, Finland
tel. +358 2333 7456
gsm. +358 40 567 0084

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