News Archive

20 Dec 2013

6th TECHGENE knowledge network meeting

‘The future of molecular genetic testing’[more]

16 Dec 2013

Two major publications of the GenTEE report and CAPABILITY country reports

The European Commission's Joint Research Centre (JRC) published the final report of the GENTEE project, entitled "Genetic Testing in Emerging Economies", which represents the first worldwide effort to systematically survey and...[more]

16 Dec 2013

Draft NIH Genomic Data Sharing Policy

The National Institutes of Health (NIH) is seeking public comments on the draft Genomic Data Sharing (GDS) Policy that promotes sharing, for research purposes, of large-scale human and nonhuman genomic1data generated from...[more]

17 Oct 2013

EU Regulation on in-vitro Diagnostic Medical Devices – call for urgent action !

The European Commission issued a proposal for a new Regulation on in vitro diagnostic devices in September 2012. At the committee stage in the European Parliament, the Rapporteur Peter Liese, MEP introduced an entirely new...[more]

14 Oct 2013

EuroGentest workshop: Implementation of clinical genetic databases

This workshop will provide training for current and future implementers of accessible or shared databases for collection of actionable clinical genotype and phenotype data. [more]

01 Oct 2013

Vacancy - EMQN Deputy Director

Do you have a strong background in genetics or biomedical science with proven managerial/administrative experience? Do you have an interest in improving the quality of healthcare? Have you got experience of cutting edge...[more]

19 Sep 2013

Call for expressions of interest as Commission appointees to the new Commission expert group on rare diseases

The European Union Committee of Experts on Rare Diseases (EUCERD) has come to the end of its three year mandate during which they have assisted the European Commission with the preparation and implementation of Community...[more]

19 Sep 2013

Genetic Counseling Program Gives Cigna Customers Increased Access to Genetic Counselors

Click here for the document of The National Society of Genetic Counselors.[more]

26 Aug 2013

How to prioritize genetic tests?

Comment now on a consensus document developed by EuroGentest and the PPPC (ESHG) on how to prioritize genetic tests. [more]

28 Jun 2013

JRC publishes a report entitled 'Genetic testing offer in Europe'

with the main outcomes of an experts' meeting held in November 2012[more]

28 Jun 2013

EUCERD 8th meeting report and adoption of two sets of recommendations

The European Union Committee of Experts on Rare Diseases (EUCERD) held its 8th meeting on 5-6 June 2013, marking the end of its three-year mandate. [more]

26 Jun 2013

The First International Rare Disease Research Consortium (IRDiRC) conference: report and guidelines

The International Rare Diseases Research Consortium (IRDiRC) was initiated by the European Commission and the US National Institutes for Health Research and launched in April 2011 to foster international collaboration in the rare...[more]

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