Genetic Alliance UK (GA) is a national alliance of patient organisations with a membership of over 130 charities which support children, families and individuals affected by genetic disorders.
Internalial Genetic Alliance (GA) is an alliance of continental and regional alliances of parent and patient organisations and of international disease specific groups all having an involvement in the opportunities and implications of genetics and biotechnology regarding its potential for prevention and treatment of serious diseases.
European Organisation for Rare Diseases
The portal for rare diseases and orphan drugs
The Erfocentrum is the Dutch national genetic resource and information centre. It provides information on genetics, pregnancy and perinatal care, medical biotechnology and relevant professionals through various websites, brochures and events. People are also able to contact the Erfocentrum directly for personal queries via e mail and telephone, through the Erfolijn helpdesk.
Uniamo is a national alliance of patients, based in Italy, which aims to improve the rights and quality of life of all persons affected by rare illnesses
the relational database on rare disorders, a virtual community for families, health professionals and specialists. AidWeb.org is an interactive web portal where information on rare diseases can be both given and received.
CEE GN is a coalition of patients, family support groups and individuals, working together with scientists and industry to support people with common and rare genetic and congenital conditions and their families in countries of Central and Eastern Europe.
Portal to rare disease information and research
RareShare is a unique social hub building communities for patients, families, and healthcare professionals affected by rare disorders.
Information for European patients about genetic testing and research.