List of Public Genetic Support Groups

Public Genetic Support Groups for Fragile X, Cystic Fibrosis, Down Syndrome, Muscular Dystrophy and Prader Willi

This list will continue to grow as the project developes. Please check back here to see new listings as they are added.

Country Name
CA_01.png Canada Adult Cystic Fibrosis Committee of Quebec [ more ]
AR.png Argentina Argentina Prader Willi Support Group [ more ]
AU.png Australia Australian Prader Willi Support Group [ more ]
AT_01.png Austria Austrian Down's Syndrome Support Group [ more ]
AT_02.png Austria Austrian Prader Willi Support Groups [ more ]
BE.png Belgium Belgium Fragile X Support Groups [ more ]
BE_01.png Belgium Belgium Hereditary AngioEdema Support Group [ more ]
BR.png Brazil Brazilian Prader Willi Support Group [ more ]
CA.png Canada Canadian Cystic Fibrosis Foundation [ more ]
CA_02.png Canada Canadian Directory of Genetic Support Groups [ more ]
IT_03.png Italy CF Italy [ more ]
WW_01.png World Wide cForward.net [ more ]
US.png USA CFRI [ more ]
UK_06.png United Kingdom Contact a Family [ more ]
AU_01.png Australia Cystic Fibrosis Australia [ more ]
US_01.png USA Cystic Fibrosis Foundation [ more ]
IL_01.png Israel Cystic Fibrosis Foundation of Israel [ more ]
NZ_01.png New Zealand Cystic Fibrosis of New Zealand [ more ]
WW.png World Wide Cystic Fibrosis Resource [ more ]
UK_03.png United Kingdom Cystic Fibrosis Trust [ more ]
WW_02.png World Wide Cystic Fibrosis Worldwide [ more ]
CZ.png Czech Republic Czech Republic Down's Syndrome Support Group [ more ]
DK.png Denmark Danish Down's Syndrome Support Group [ more ]
DK_01.png Denmark Danish Prader Willi Support Group [ more ]
NL_01.png The Netherlands Dutch CF Association [ more ]
NL.png The Netherlands Dutch Fragile X Support Group [ more ]
NL_05.png The Netherlands Dutch Genetic Alliance [ more ]
UK.png United Kingdom English Fragile X Support Group [ more ]
NL_04.png The Netherlands Erfocentrum [ more ]
EU_01.png European Union European Cystic Fibrosis Society [ more ]
EU_02.png European Union European Organisation for Rare disorders [ more ]
FI.png Finland Finnish Down's Syndrome Support Group [ more ]
FI_01.png Finland Finnish Prader Willi Support Group [ more ]
FR_01.png France French Down's Syndrome Support Group [ more ]
FR.png France French Fragile X Support Groups [ more ]
FR_02.png France French Prader Willi Support Group [ more ]
UK_05.png United Kingdom Genetic Interest Group [ more ]
DE_01.png Germany German Down's Syndrome Support Group [ more ]
DE.png Germany German Fragile X Support Group [ more ]
DE_02.png Germany German Prader Willi Support Group [ more ]
IS.png Iceland Icelandic Down's Syndrome Support Group [ more ]
IE_01.png Ireland Irish Down's Syndrome Support Group [ more ]
IE.png Ireland Irish Fragile X Society [ more ]
IL.png Israel Israeli Prader Willi Support Groups [ more ]
IT_01.png Italy Italian Down's Syndrome Support Groups [ more ]
IT.png Italy Italian Fragile X Support Groups [ more ]
IT_02.png Italy Italian Prader Willi Support Group [ more ]
LU.png Luxembourg Luxembourg Down's Syndrome Support Group [ more ]
MT.png Malta Malta Down's Syndrome Support Group [ more ]
NIR.png Northern Ireland Muscular Dsytophy of Northern Ireland & Isle of Man [ more ]
US_03.png USA Muscular Dystrophy Association [ more ]
AU_02.png Australia Muscular Dystrophy Australia [ more ]
UK_04.png United Kingdom Muscular Dystrophy Campaign [ more ]
FR_03.png France Muscular Dystrophy France [ more ]
IT_04.png Italy Muscular Dystrophy Italian Association [ more ]
NL_03.png The Netherlands Muscular Dystrophy of The Netherlands [ more ]
IE_02.png Ireland Muscular Dytophy Ireland [ more ]
WW_03.png World Wide National Cystic Fibrosis Awareness Committee [ more ]
NL_02.png The Netherlands Nederlandse Cystic Fibrosis Stichting [ more ]
NZ.png New Zealand New Zealand Prader Willi Support Group [ more ]
NO_01.png Norway Norweigen Down's Syndrome Support Group [ more ]
NO.png Norway Norweigen Fragile X Support Group [ more ]
PT.png Portugal Portuguese Fragile X Support Group [ more ]
EU.png European Union Prader Willi General Information [ more ]
US_02.png USA Reaching Out Foundation [ more ]
Russia Russian Down's Syndrome Support Group [ more ]
SK.png Slovakia Slovakia Down's Syndrome Support Group [ more ]
ZA_01.png South Africa South African Cystic Fibrosis Association [ more ]
ZA.png South Africa South African Prader Willi Support Group [ more ]
ES_03.png Spain Spanish Cystic Fibrosis Federation [ more ]
ES_01.png Spain Spanish Down's Syndrome Support Group [ more ]
ES.png Spain Spanish Fragile X Support Groups [ more ]
ES_02.png Spain Spanish Prader Willi Support Groups [ more ]
SE_03.png Sweden Swedish CF [ more ]
SE_01.png Sweden Swedish Down's Syndrome Support Group [ more ]
SE.png Sweden Swedish Fragile X Support Group [ more ]
SE_02.png Sweden Swedish Prader Willi Support Group [ more ]
CH_01.png Switzerland Swiss Down's Syndrome Support Groups [ more ]
CH.png Switzerland Swiss Fragile X Support Group [ more ]
CH_02.png Switzerland Swiss Prader Willi Support Group [ more ]
EU_03.png European Union The European Genetic Alliances' Network [ more ]
UK_01.png United Kingdom UK Down's Syndrome Support Groups [ more ]
UK_02.png United Kingdom UK Prader Willi Support Group [ more ]
UK_07.png United Kingdom Unique [ more ]
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