List of Public Genetic Support Groups

Public Genetic Support Groups for Fragile X, Cystic Fibrosis, Down Syndrome, Muscular Dystrophy and Prader Willi

This list will continue to grow as the project developes. Please check back here to see new listings as they are added.

Country Name
AR.png Argentina Argentina Prader Willi Support Group [ more ]
AU.png Australia Australian Prader Willi Support Group [ more ]
AU_01.png Australia Cystic Fibrosis Australia [ more ]
AU_02.png Australia Muscular Dystrophy Australia [ more ]
AT_01.png Austria Austrian Down's Syndrome Support Group [ more ]
AT_02.png Austria Austrian Prader Willi Support Groups [ more ]
BE.png Belgium Belgium Fragile X Support Groups [ more ]
BE_01.png Belgium Belgium Hereditary AngioEdema Support Group [ more ]
BR.png Brazil Brazilian Prader Willi Support Group [ more ]
CA.png Canada Canadian Cystic Fibrosis Foundation [ more ]
CA_01.png Canada Adult Cystic Fibrosis Committee of Quebec [ more ]
CA_02.png Canada Canadian Directory of Genetic Support Groups [ more ]
CZ.png Czech Republic Czech Republic Down's Syndrome Support Group [ more ]
DK.png Denmark Danish Down's Syndrome Support Group [ more ]
DK_01.png Denmark Danish Prader Willi Support Group [ more ]
EU.png European Union Prader Willi General Information [ more ]
EU_01.png European Union European Cystic Fibrosis Society [ more ]
EU_02.png European Union European Organisation for Rare disorders [ more ]
EU_03.png European Union The European Genetic Alliances' Network [ more ]
FI.png Finland Finnish Down's Syndrome Support Group [ more ]
FI_01.png Finland Finnish Prader Willi Support Group [ more ]
FR.png France French Fragile X Support Groups [ more ]
FR_01.png France French Down's Syndrome Support Group [ more ]
FR_02.png France French Prader Willi Support Group [ more ]
FR_03.png France Muscular Dystrophy France [ more ]
DE.png Germany German Fragile X Support Group [ more ]
DE_01.png Germany German Down's Syndrome Support Group [ more ]
DE_02.png Germany German Prader Willi Support Group [ more ]
IS.png Iceland Icelandic Down's Syndrome Support Group [ more ]
IE.png Ireland Irish Fragile X Society [ more ]
IE_01.png Ireland Irish Down's Syndrome Support Group [ more ]
IE_02.png Ireland Muscular Dytophy Ireland [ more ]
IL.png Israel Israeli Prader Willi Support Groups [ more ]
IL_01.png Israel Cystic Fibrosis Foundation of Israel [ more ]
IT.png Italy Italian Fragile X Support Groups [ more ]
IT_01.png Italy Italian Down's Syndrome Support Groups [ more ]
IT_02.png Italy Italian Prader Willi Support Group [ more ]
IT_03.png Italy CF Italy [ more ]
IT_04.png Italy Muscular Dystrophy Italian Association [ more ]
LU.png Luxembourg Luxembourg Down's Syndrome Support Group [ more ]
MT.png Malta Malta Down's Syndrome Support Group [ more ]
NZ.png New Zealand New Zealand Prader Willi Support Group [ more ]
NZ_01.png New Zealand Cystic Fibrosis of New Zealand [ more ]
NIR.png Northern Ireland Muscular Dsytophy of Northern Ireland & Isle of Man [ more ]
NO.png Norway Norweigen Fragile X Support Group [ more ]
NO_01.png Norway Norweigen Down's Syndrome Support Group [ more ]
PT.png Portugal Portuguese Fragile X Support Group [ more ]
Russia Russian Down's Syndrome Support Group [ more ]
SK.png Slovakia Slovakia Down's Syndrome Support Group [ more ]
ZA.png South Africa South African Prader Willi Support Group [ more ]
ZA_01.png South Africa South African Cystic Fibrosis Association [ more ]
ES.png Spain Spanish Fragile X Support Groups [ more ]
ES_01.png Spain Spanish Down's Syndrome Support Group [ more ]
ES_02.png Spain Spanish Prader Willi Support Groups [ more ]
ES_03.png Spain Spanish Cystic Fibrosis Federation [ more ]
SE.png Sweden Swedish Fragile X Support Group [ more ]
SE_01.png Sweden Swedish Down's Syndrome Support Group [ more ]
SE_02.png Sweden Swedish Prader Willi Support Group [ more ]
SE_03.png Sweden Swedish CF [ more ]
CH.png Switzerland Swiss Fragile X Support Group [ more ]
CH_01.png Switzerland Swiss Down's Syndrome Support Groups [ more ]
CH_02.png Switzerland Swiss Prader Willi Support Group [ more ]
NL.png The Netherlands Dutch Fragile X Support Group [ more ]
NL_01.png The Netherlands Dutch CF Association [ more ]
NL_02.png The Netherlands Nederlandse Cystic Fibrosis Stichting [ more ]
NL_03.png The Netherlands Muscular Dystrophy of The Netherlands [ more ]
NL_04.png The Netherlands Erfocentrum [ more ]
NL_05.png The Netherlands Dutch Genetic Alliance [ more ]
UK.png United Kingdom English Fragile X Support Group [ more ]
UK_01.png United Kingdom UK Down's Syndrome Support Groups [ more ]
UK_02.png United Kingdom UK Prader Willi Support Group [ more ]
UK_03.png United Kingdom Cystic Fibrosis Trust [ more ]
UK_04.png United Kingdom Muscular Dystrophy Campaign [ more ]
UK_05.png United Kingdom Genetic Interest Group [ more ]
UK_06.png United Kingdom Contact a Family [ more ]
UK_07.png United Kingdom Unique [ more ]
US.png USA CFRI [ more ]
US_01.png USA Cystic Fibrosis Foundation [ more ]
US_02.png USA Reaching Out Foundation [ more ]
US_03.png USA Muscular Dystrophy Association [ more ]
WW.png World Wide Cystic Fibrosis Resource [ more ]
WW_01.png World Wide cForward.net [ more ]
WW_02.png World Wide Cystic Fibrosis Worldwide [ more ]
WW_03.png World Wide National Cystic Fibrosis Awareness Committee [ more ]
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