Guidelines on professional education in genetics

Guidelines on genetic education which are available at national level in Europe and published by international organizations..

1.1 EU NATIONAL GUIDELINES

1.1.1 Medical undergraduate students

    • France
      Guidance of medical genetic issues for undergraduate students.
      Jeanpierre M et al. Objectifs pedagogiques de l’inseignement de Genetique.La commission pedagogique du College national des geneticiens, 2001.
    • Germany
      Catalogue of teaching objectives DGMBT Gegenstandskatalog Medizintechnik, Biomedizinische Technik und Klinikingenieurswesen, VDE, 2001.
  1. UK
    Teaching medical genetics to undergraduate medical students.
    British Society for Human Genetics, 2003.
    http://www.bshg.org.uk/documents/official_docs/Undergrad.doc

1.1.2 Post graduate, Geneticists

  1. Italy
  2. Belgium
    Carrier testing in minors:a systematic review of guidelines and position papers.
    P.Borry et al. (2006) Eur J Human Genetics14, 133-138. A review of all published ethical and clinical guidelines concerning the genetic carrier testing of minors.
  3. Netherlands
    Unclassified variants in disease-causing genes: nonuniformity of genetic and counselling, a proposal for guidelines.
    Vink GR. t al (2005) Eur J Human Genetics 13:525-527. Dutch guidelines about the communication of genetic tests by the clinical geneticists to the counselee.

1.1.3 Post graduate, Health Professionals

  1. UK
    Fit for practice in the genetics era: a competence based education framework for nurses, midwives and health visitors.
    Kirk M et al. 2003. It is a competence based education framework for nurses, midwives and health visitors across the UK prepared by the NHS Genetics Team. They represent the minimum knowledge, skills, and attitudes necessary for health professionals from all disciplines to provide patient care that incorporates genetic perspectives and reflects sensitivity to related ethical, legal, and social concerns.
    http://www.glam.ac.uk/socs/research/gpu/FinalReport.pdf

1.2 EUROPEAN GUIDELINES

In this chapter guidelines that are relevant to genetic education published by the European Society of Human Genetics are discussed.

1.3 INTERNATIONAL ORGANIZATIONS

  • WMA, Declaration of Helsinki
    The World Medical Association has developed the Declaration of Helsinki as a statement of ethical principles to provide guidance to physicians and other participants in medical research involving human subjects. This can be found on the website in the continuing medical education section.
    Download
  • Standards and Guidelines for Clinical Genetics Laboratories.
    Technical standard and guideline: Prenatal screening for open neural tube defects. American College of Medical Genetic Vol.7(5), May/June 2005 pp 355-369. These standards and guidelines are designed primarily as an educational resource for clinical laboratory geneticists.
    www.geneticsinmedicine.org
  • Principles of Genetics for Health Professionals.
    USA National Coalition for Health Professional Education in Genetics (NCHPEG). A guidance document that should constitute basic instruction in genetics for those in health care.
    View principles
  • The NCHPEG core competencies
    USA National Coalition for Health Professional Education in Genetics (NCHPEG). It provides the guiding framework on teaching programs throughout the United States about genetics and about strategies to incorporate genetics as a recurring theme in graduate curricula.
    Core competencies
  • Recommendations for educating nurses in genetics
    Jenkins et al. Professional Nursing, 17(6), 283-290, 2001. USA recommendation for genetic education for nurses.
  • Ethical issues in identifying and recruiting participants for familial genetic research.
    Beskow L et al. Am J Med Genetics 130A:424-431, 2004 The Cancer Genetics Network Bioethics Committee (USA) developed recommendations about appropriate approaches in cancer genetic research.
  • WHO, Medical Genetics Services in Latin America
    This is the report of WHO Collaborating Center for Community Genetics and Education in Latin America following the 9th international congress of Genetics published by a group of experts in medical genetics from Latin America about genetic services and to give recommendations for the continuing development of the field in the areas of services, training and research.
    http://whqlibdoc.who.int/hq/1998/WHO_HGN_CONS_MGS_98.4.pdf
  • US Preventive Services Task Force, USPSTF Recommendations
    Genetic risk assessment and BRCA mutation testing for breast and ovarian cancer susceptibility: recommendation statement. Ann Intern Med 143:355-61, 2005.
  • Ethical guidelines in genetics and genomics. An Islamic perspective.
    Al-Aqeel AI. Saudi Med J. 2005 Dec;26(12):1862-70
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