Website Policies (Updated November, 2008)

Mission statement

EuroGentest is an EU-funded Network of Excellence (NoE) with 5 Units looking at all aspects of genetic testing: Quality Management, Information Databases, Public Health, New Technologies, Education. Through a series of initiatives EuroGentest encourages the harmonization of standards and practice in all these areas throughout the EU and beyond.

Advertising policy

The site does not host or receive funding from advertising or from the display of commercial content. Companies promoted on our web site are participants of the project and an integral part of the working of this web site. Any links to foreign web sites and organisations are provided as reference and are not to be considered advertising.

We collect IP address information so we can properly administer our system and gather aggregate information about how our site is being used, including the pages visitors are viewing. This aggregate information may be shared with advertisers, sponsors and other businesses anonymously.

Disclaimer

The information provided on EuroGentest.org is designed to support, not replace, the relationship that exists between a patient/site visitor and his/her physician.

We have done our best to ensure that the information presented in this web site is correct. However no warranty is provided or implied, including any warranty of merchantability or fitness for a particular purpose. As such, you agree that by using this site you assume the risk of all loss or injury resulting from any information found within. In no event shall the owner of this web site, or any agent thereof, be liable under any theory based on contract, negligence or strict liability or any other legal or equitable theory to any party for any amounts including, without limitation, lost revenues , lost profits, lost business or indirect, consequential, incidental, special or punitive damages. This disclaimer shall survive any and all notices advising of the possibility that any user may suffer harm from any inaccuracies contained herein.

Accessibility policy

EuroGentest is committed to making all of our web pages and documents accessible to everyone. To ensure that we meet the requirements of the W3C Web Content Accessibility Guidelines, we continually review our site and modify pages to remove accessibility problems for people with disabilities.

Many documents on our web pages are in HTML format, accessible to people who use screen reading software and to those with other vision or mobility impairments. Generally, we use Hypertext Markup Language (HTML) to create pages and documents that are accessible to everyone.

In creating HTML documents, we follow the W3C WCAG standards.

Currently, our website also contains documents in Adobe Acrobat PDF (Portable Document Format) files; and right now, many people who use screen reading devices can't read them. To solve that problem, Adobe Systems, Inc. is developing several products designed to make PDF documents more accessible to screen reading software. Adobe's accessibility web pages describe their efforts. While those products are in development, we will provide text or HTML versions of our PDF documents.

Design standards

We have done our best to adhere to the most commonly used standards in web design and programming. Standards we follow include:

RSS

Privacy Policy

Eurogentest.org is committed to protecting your online privacy. We feel it is important for you to know how we handle the information we receive from you via the Internet. In general, you can visit www.eurogentest.org without revealing any personal information. However, you are required to provide personal information to gain access to some of our content and services, as explained below.

How we and our affiliates collect and use personal information

Registering with Eurogentest.org allows you to personalize the "My Eurogentest" section of our site. The only information required for registration is your name, e-mail address and country. Eurogentest.org may contain links to Web sites operated by third parties. Eurogentest.org has no control over the privacy policies and practices of such third-party sites, and if you have any concerns, you are urged to review the terms of those sites for more information about the policies applicable to those sites.

IP addresses

We collect and log the IP address of all visitors to Eurogentest.org. An IP address is a number automatically assigned to your computer whenever you access the Internet. IP addresses allow computers and servers to recognize and communicate with one another. We collect IP address information so we can properly administer our system and gather aggregate information about how our site is being used, including the pages visitors are viewing. This aggregate information may be shared with advertisers, sponsors and other businesses. To maintain your anonymity, we do not associate IP addresses with records containing personal information. We will use IP address information, however, to personally identify you in order to enforce our legal rights or when required to do so by law enforcement authorities.

How we use 'cookies'

As you probably know, "cookies" are small pieces of information that some Web sites store on your computer's hard drive when you visit them. Like many other Web sites, Eurogentest.org uses cookies to provide us with information relating to the sources of our site traffic. Collecting this information, however, does not allow us to personally identify you.

Most Web browsers automatically accept cookies but allow you to modify security settings so that you can approve or reject cookies on a case-by-case basis. Our site requires that both cookies and JavaScript be enabled. If you reject cookies from our site, some parts of the site may not work properly for you.

Registration

We collect personal information that you choose to share with us in the registration of our site. This information includes your name and e-mail address. Information from registration is saved to our database. This enables you to use the personalized features on our site on a recurring basis. This saved information is collected only with your permission and may be updated or deleted by you at any time. If you choose to not provide the information required for registration, you may not register with the site and you will not be able to personalize the site.

Once you have registered with our site, you can update the information in your "profile" at any time by logging in and visiting the "My Eurogentest" page. You may decide at some point that you no longer wish to be registered. To unregister, send an e-mail message to webmaster[at]eurogentest[dot]org or send regular mail to the following postal address:

Webmaster Eurogentest
Centre for Human Genetics O&N1
Herestraat 49 box 602
3000 Leuven
Belgium

Deleting your profile will remove you from our user database, and you will no longer receive the information you requested when you registered.

It's not technologically possible for us to remove from our servers every record of the information you've provided to MayoClinic.com. The need to back up our systems to protect information from inadvertent loss means that a copy of your personal information may exist in a non erasable form that will be difficult or impossible for us to locate. Nevertheless, we promise that upon receiving your deletion request, all personal information stored in the databases we actively use for research and daily business activities, and other readily searchable media, will be deleted.

Remember:

  • Unsubscribing from our e-mail newsletter will not delete your profile information.
  • Your personal information will remain accessible to you so long as you log in to the site on a regular basis.

How we protect your personal information

All personally identifiable data that you enter on this site are encrypted with secure server software (SSL). The encryption means that your data are protected while they are being transferred over the Internet to our servers.

Once your data reach our servers, the same state-of-the art security software that guards our essential data protects your personal data as well.

In addition to using the most secure technology available, we de-identify the information you provide before it is used in any aggregate reporting that may be done. What we provide to third parties

Eurogentest.org does not provide any third-party access to your personal information unless the information has been aggregated and de-identified to make it anonymous. We may provide third parties with aggregate statistics about our visitors, traffic patterns and related site information. These data reflect site-usage patterns gathered during visits to our Web site each month, but they do not contain behavioural or identifying information about any individual member unless that member has given us permission to share that information.

Our sponsors and advertisers and their Ad Servers may use cookies when you view pages on our site. They use those cookies to collect non-personal information as a way of measuring the effectiveness of their advertising. We do not control these third parties' use of cookies or how they manage the non-personal information they gather through them. However, our sponsors and advertisers have agreed that they will not collect any personally identifiable information from our site visitors while they are on Eurogentest.org. If you click on an advertisement on Eurogentest.org and visit a site maintained by one of our sponsors or advertisers, please be aware that we are not responsible for the privacy practices of that site. You should read the privacy policies of each site you visit to determine what information that site may be collecting about you.

Aggregate information

We use general traffic, site usage and length-of-stay information in reports to advertisers and firms with which we have a business relationship. This sort of information is shared only in aggregate and does not personally identify you.

Children's privacy

This site is intended for all ages.

The e-mail functionality on our site does not provide a completely secure and confidential means of communication. It's possible that your e-mail communication may be accessed or viewed by another Internet user while in transit to us. If you wish to keep your communication private, do not use our e-mail.

Complaint process

If you have a complaint or problem, or if you believe your privacy rights have been violated, you may e-mail via ‘Contact us’ link at the bottom of every page. Please indicate the following reason for contacting us: I want to provide feedback about your site. Our Webmaster will forward your complaint to the appropriate Eurogentest.org person for response or resolution. You may want to write to Eurogentest’s webmaster:

Webmaster Eurogentest
Centre for Human Genetics O&N1
Herestraat 49 box 602
3000 Leuven
Belgium

Changes to our Privacy policy

We will occasionally update this Privacy policy. You will see the word "updated" followed by the date next to the Privacy policy link near the bottom of all pages on the site. If the "updated" date has changed since you last visited, you're encouraged to review the policy to be informed of how this site is protecting your information.

Remember: You may opt out of our services at any time you do not agree with the terms of this policy by simply deleting your personal profile.

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University of Leuven
Herestraat 49 Box 602, 3000 Leuven, Belgium
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Copyright EuroGentest2 Coordination Action 2011 - EU Contract no.: FP7 - HEALTH-F4-2010-261469