List of Public Genetic Support Groups

Public Genetic Support Groups for Fragile X, Cystic Fibrosis, Down Syndrome, Muscular Dystrophy and Prader Willi

This list will continue to grow as the project developes. Please check back here to see new listings as they are added.

Associated Organizations

Argentina

Argentina Prader Willi Support Group

Australia

Australian Prader Willi Support Group Cystic Fibrosis Australia Muscular Dystrophy Australia

Austria

Austrian Down's Syndrome Support Group Austrian Prader Willi Support Groups

Belgium

Belgium Fragile X Support Groups Belgium Hereditary AngioEdema Support Group

Brazil

Brazilian Prader Willi Support Group

Canada

Canadian Cystic Fibrosis Foundation Adult Cystic Fibrosis Committee of Quebec Canadian Directory of Genetic Support Groups

Czech Republic

Czech Republic Down's Syndrome Support Group

Denmark

Danish Down's Syndrome Support Group Danish Prader Willi Support Group

European Union

Prader Willi General Information European Cystic Fibrosis Society European Organisation for Rare disorders The European Genetic Alliances' Network

Finland

Finnish Down's Syndrome Support Group Finnish Prader Willi Support Group

France

French Fragile X Support Groups French Down's Syndrome Support Group French Prader Willi Support Group Muscular Dystrophy France

Germany

German Fragile X Support Group German Down's Syndrome Support Group German Prader Willi Support Group

Iceland

Icelandic Down's Syndrome Support Group

Ireland

Irish Fragile X Society Irish Down's Syndrome Support Group Muscular Dytophy Ireland

Israel

Israeli Prader Willi Support Groups Cystic Fibrosis Foundation of Israel

Italy

Italian Fragile X Support Groups Italian Down's Syndrome Support Groups Italian Prader Willi Support Group CF Italy Muscular Dystrophy Italian Association

Luxembourg

Luxembourg Down's Syndrome Support Group

Malta

Malta Down's Syndrome Support Group

New Zealand

New Zealand Prader Willi Support Group Cystic Fibrosis of New Zealand

Northern Ireland

Muscular Dsytophy of Northern Ireland & Isle of Man

Norway

Norweigen Fragile X Support Group Norweigen Down's Syndrome Support Group

Portugal

Portuguese Fragile X Support Group

Russia

Russian Down's Syndrome Support Group

Slovakia

Slovakia Down's Syndrome Support Group

South Africa

South African Prader Willi Support Group South African Cystic Fibrosis Association

Spain

Spanish Fragile X Support Groups Spanish Down's Syndrome Support Group Spanish Prader Willi Support Groups Spanish Cystic Fibrosis Federation

Sweden

Swedish Fragile X Support Group Swedish Down's Syndrome Support Group Swedish Prader Willi Support Group Swedish CF

Switzerland

Swiss Fragile X Support Group Swiss Down's Syndrome Support Groups Swiss Prader Willi Support Group

The Netherlands

Dutch Fragile X Support Group Dutch CF Association Nederlandse Cystic Fibrosis Stichting Muscular Dystrophy of The Netherlands Erfocentrum Dutch Genetic Alliance

United Kingdom

English Fragile X Support Group UK Down's Syndrome Support Groups UK Prader Willi Support Group Cystic Fibrosis Trust Muscular Dystrophy Campaign Genetic Interest Group Contact a Family Unique

USA	CFRI Cystic Fibrosis Foundation Reaching Out Foundation Muscular Dystrophy Association

World Wide

Cystic Fibrosis Resource cForward.net Cystic Fibrosis Worldwide National Cystic Fibrosis Awareness Committee

Last changed: 2005-05-16