Articles and reports released by unit 4

Workpackage 6.3: Ethical issues

A literature review has been done on the topic of genetic testing in minors.

• A Technology Assessment Contribution to the Eurogentest Network of Excellence, 2005, Brussel. VIWTA, Ethical and Social Aspects of Genetic Testing Services: Issues and Possible Actions.
• P. Borry, JP Fryns, P. Schotsmans & K. Dierickx, "Attitudes Towards Carrier Testing in Minors: a Systematic Review", Genetic Counseling, Vol. 16, No. 4, 2005, 341-352.
• P. Borry, JP Fryns, P. Schotsmans & K. Dierickx, Carrier Testing in Minors: A Systematic Review of Guidelines and Position Papers European Journal of Human Genetics 14 (2006)133-138.
• Pascal Borry, Louise Stultiens, Herman Nys, Jean-Jacques Cassiman, Kris Dierickx, Presymptomatic and predictive genetic testing in minors: a systematic review of guidelines and position papers, Clinical Genetics 70 (2006) 5, 374-81.
• P. Borry, J.P. Fryns, K. Dierickx, in A. de Bouvet, P. Boitte, G. Aiguier, Predictive Genetic Testing in Children. A clinical-ethical analysis, Questions éthiques en medicine prédictive, Montrouge, John Libbey and Company, 2006.
• Pascal Borry, Louise Stultiëns, Herman Nys, Kris Dierickx, Attitudes towards predictive genetic testing in minors for familial breast cancer: a systematic review. Critical Reviews in oncology and hematology, doi:10.1016/j.critrevonc.2007.04.006
• P. Borry, K. Dierickx. Carrier testing for congenital adenal hyperplasia: ethical issues. Cares 6 (1) Winter 2007, p. 16-18.
• Pascal Borry, Herman Nys, Kris Dierickx, Carrier testing in minors: conflicting minors. Nature Review Genetics 8 (2007) 828

A survey of clinical geneticists has been done on the topic of genetic testing in minors.

• Pascal Borry, Tom Goffin, Herman Nys, Kris Dierickx, Attitudes regarding carrier testing in incompetent children. A survey of European clinical geneticists, European Journal of Human Genetics (in press).
• Pascal Borry, Louise Stultiëns, Tom Goffin, Herman Nys, Kris Dierickx, Minors and informed consent in carrier testing. A survey of European clinical geneticists, Journal of Medical Ethics (in press)

Other

• Pascal Borry, Angus Clarke, Kris Dierickx, Carrier screening for Gaucher, European Journal of Human Genetics (advanced e-publication).
• P. Borry, H. Nys, T. Goffin & K. Dierickx, Genetic testing and counseling, European guidance, Ethical-Legal Papers n°4, Leuven, 2007, 91p (ISBN: 978-90-334-6579-6).

Last changed: 2008-09-15