Advisory Board

Representative of the Presidents of National Human Genetic Societies

• Bartram Claus; Institut für Human Genetik, Heidelberg, Germany [http://www.klinikum.uni-heidelberg.de/Humangenetik.116.0.html ]

European Organizations

• Bennett David; European federation of Biotechnology (EFB), Delft, the Netherlands [http://www.efb-central.org/ ]

European Society of Human Genetics

• Pignatti Pier Franco; University of Verona, Verona, Italy [http://www.univr.it ]

UK Genetic Testing Network

• Farndon Peter; Birmingham, United Kingdom [http://www.genetictestingnetwork.org.uk/ ]

Representatives of the Biotech industry

• Tambuyzer Erik; EuropaBio, Brussels, Belgium [http://www.europa-bio.be ]
• Tarrajat Christine; European Diagnostic Manufacturers Association (EDMA), Brussels, Belgium [http://www.edma-ivd.be/ ]
• Tomoshige Hori; Japan Bioindustry Association, Tokyo, Japan [http://www.jba.or.jp/ ]

Health policy officials

• Delpech Marc; Hôpital Cochin , Paris, France
• Taruscio Domenica; coordinator of NEPHIRD, National Center for Rare Diseases, Rome, Italy [http://www.iss.it/cnmr/ ]

International organizations

• Boone Joe; Centers for Disease Control and Prevention, Atlanta, USA [http://www.cdc.gov/ ]
• Boulyjenkov Victor; WHO, Genève, Switzerland [http://www.who.int ]
• Richards Carolyn Sue; American College of Medical genetics, Baylor college, Houston, USA [http://www.acmg.net/ ]
• Ronchi Elettra; OECD, Paris, France [http://www.oecd.org ]

Representatives of the academic institutions and of governmental organisations of the partners

• Debackere Koen, General Manager Catholic University Leuven and chair of Leuven Research and Development, Leuven, Belgium [http://www.kuleuven.be/lrd ]

Representative of the patient organizations

• Grzegorz Wegrzyn, Chair of Central Europe and Eastern countries Genetic Network (CEE-GN), Gdansk, Poland [http://www.ceegn.org/ ]

Last changed: 2008-11-27