Patients & Family

Patient Information

EuroGentest has developed a series of 11 leaflets to provide general information for patients and families about:

• Genetic Inheritance Patterns
• Chromosome Problems
• Genetic Testing
• Information About Your Genetic Appointment.
• Select your language:
  
  • English
  • Polski
  • българин
  • Türkçe
  • Nederlands (nl)
  • Român
  • Eesti
  • Nederlands (be)
  • Deutsch
  • Português
  • Suomeksi
  • Svenska
  • Español
  • Czech
  
  

Patient rights in the EU

A series of reports of genetic patients rights in the EU highlights major variations and anonamolies across the community.

• Czech Republic,
• Denmark,
• Estonia,

• Greece,
• Bulgaria,
• Cyprus,

• Lithuania,
• Portugal,
• Slovakia,

• Spain,
• Slovenia
• Hungary,

Professional Organisations

• Health Professional Organisations in EU States relevant to Genetics
• National Ethics Committees
• European Group on Ethics in Science & New Tech.
• European Health Committees
• More organisations can be found on the Orphanet website.
• National Societies of Human Genetics (NSHG) in Europe

Other Documents and Resources

• Regulation and practices related to genetic counselling in 38 European countries pdf version )
• National Regulation of Genetic Counselling
• Clinical validity and utility of genetic testing - the viewpoint of a clinical geneticist.
• Useful Links