Patients & Family

Patient Information

EuroGentest has developed a series of 15 leaflets to provide general information for patients and families about genetics and genetic testing:

Genetic Tests	Inheritance Patterns	General Information
What is a Genetic Test? The Amniocentesis Chorionic Villus Sampling (CVS) Test Carrier Testing Predictive Testing Predictive Testing for Inherited Cancer	Dominant Inheritance Recessive Inheritance X Linked Inheritance Chromosome Changes Chromosome Translocations	Some Information About Your Genetic Appointment What Happens in a Genetics Laboratory Genetic Glossary Frequently Asked Questions About Genetic Testing

The leaflets can either be downloaded and printed out, or you can look at the information online by choosing the HTML version.
Select your language:

Patient rights in the EU

A series of reports of genetic patients rights in the EU highlights major variations and anonamolies across the community.

Professional Organisations

Health Professional Organisations in EU States relevant to Genetics
National Ethics Committees
European Group on Ethics in Science & New Tech.
European Health Committees
More organisations can be found on the Orphanet website.
National Societies of Human Genetics (NSHG) in Europe

Find a genetic test or lab

Find information on a genetic diseases, genetic tests, quality assurance (QAu) for laboratories across Europe.

Find a support group / patient organization / professionals

Orphanet Formal partnership with EuroGentest

Orphanet Exit this website is a database of rare diseases, which was designed to assist in diagnosing and treating rare diseases, as well as to further clinical research. It has been selected to serve as the central database of the EuroGenTest network.