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Instrument for quality self-assessment in provision of genetic counselling

This instrument is created by an Expert Group of EuroGentest NoE for internal assessment of the quality of genetic counselling within a genetic counselling clinic. The aim is to support internal education, improve the quality and to start the process of documenting issues related to quality development in genetic counselling clinics.

The evaluation is recommended to be done at regular intervals, for example once a year. Improvements in quality may be followed by comparing the results with those of previous years. Staff of two or more clinics may choose to collaborate in assessing each other and to compare results. The development, problems encountered etc. are discussed in a clinic meeting. Evaluation forms are stored to enable improvements in quality to be tracked and, possibly, to be used as proof of development in case of external evaluations.

The instrument may have to be modified or partially used in situations, where the organisation of health care or the resources allocated for genetic counselling are very different from the average.

The instrument can be used as a web tool. There are 11 indicators of quality, and each of them includes more than one criterion for evaluation. The evaluation is recorded by briefly describing the situation in the "realisation" column and using the traffic light indicators as a simplified visual aid. In addition, text can be added to describe the situation and problems encountered in more detail.

Traffic light indicators:

The goal was attained
The goal was not attained, but the process was started
The goal was not attained and the process was not started


Expert group

  • Angus Clarke (UK)
  • Gerry Evers-Kiebooms (Belgium)
  • Andrew Fawcett (USA)
  • Marja Hietala (Finland)
  • Claire Julian-Reynier (France)
  • Lauren Kertzin-Storrar (UK)
  • Ulf Kristoffersson (Sweden)
  • Helena Kääriäinen (Finland)
  • Irma Nippert (Germany)
  • Elina Rantanen (Finland)
  • Joerg Schmidtke (Germany)
  • Jorge Sequeiros (Portugal)
  • Heather Skirton (UK)
  • Aad Tibben (The Netherlands)

Self assessment tool

My assessments

If you want to save partial self-assessment and continue later, please register first to EuGT website. If you have not registered, you cannot save your form but only print it. Preferably, you should have a colour printer.

Registration is simple and free of charge. Register here


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Example

Criteria Goal Realisation
Awareness of international /European guidelines Clinical staff know the EuroGentest guidelines for genetic counselling.
Guidelines have been handed to each member of the counselling team.
Awareness of national / local guidelines Clinical staff know the existing national guidelines for genetic counselling.
There is only one national guideline concerning genetic counselling in prenatal diagnostic situations: this is well known in the clinic.
National/European guidelines are implemented Clinical staff follow the guidelines systematically.
Implementation not yet started

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