Education

Genetics Educational Courses and Centres

Professional Organisations

Information for Patients and Families

Patient Leaflets
Orphanet: Database of rare diseases, patient support groups across Europe and orphan drugs.
Patient Groups by Condition/Country
Info about Patient Rights
Useful Links

Training/Workshops

Workshops on accreditation in genetic testing laboratories

Documents

Documents, Reports, Meetings & Minutes

Lectures, Publications Presentations

The patients contribution to Eurogentest

Events All events

19 Sep 2009 (IT), 1st Goldrain Course in Prenatal Genetic Diagnosis

31 Aug 2008 (IT), 3rd Goldrain Course in Clinical Cytogenetics

The course is focused on phenotypic findings, mechanisms of origin and transmission, and correlations of clinical patterns with the chromosomal imbalance.
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31 May 2008 Barcelona (ES), ESHG Conference 2008

EuroGentest will have a booth along with OrphaNet and ESHG at the upcoming meeting in Barcelona. Together with poster presentations, there will be a series of workshops and other activities with a special focus on our aim of making accreditation the norm.
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27 Oct 2007 Milan (IT), Workshop: Professional and Patient Education - Unit 6

Yearly meeting with national coordinators of Unit 6 to discuss work done in 2007 and forward planning of the next year.
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Unit Information

Patient Leaflets

patient booklets image EuroGentest has developed a series of 11 leaflets to provide information for patients and families about Genetic Inheritance Patterns, Chromosome Problems, Genetic Testing and Information About Your Genetic Appointment.
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Core competences in genetics for health professionals in Europe Final version available now.

Genomics is increasingly important to healthcare provision in Europe and an estimated 30 million people now suffer from genetic diseases within the enlarged European community (Cassiman, 2005). More professionals will be involved in testing, either directly or in dealing with the impact of testing on healthcare provision (Guttmacher et al, 2007). It is therefore essential that health professionals are appropriately prepared to deliver such patient care.
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European Advanced Postgraduate Course in Classical and Molecular Cytogenetics

EUROPEAN CYTOGENETICISTS ASSOCIATION The course in Montpellier/Nimes - France is designed to provide medical graduates, pharmacists, researchers, graduate students and health professionals with advanced training in constitutional, haematological, and oncological cytogenetics. (upd.05 Jun 2008) More... Exit EuroGentest website

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