Ethical & Legal Aspects
General Information
European Ethical & Legal Papers
Aims
We aim to develop European guidelines for genetic testing based on an ethical and legal analysis of the main principles that are present in the actual guidelines that are collected.
We also want to evaluate the arguments in favor and against a common practice of the rights of patients / users of genetic services at the level of the EU. This is framed in an evaluation of the convergences and divergences in the protection of rights of patients between the EU member states in the light of the common European framework offered by the European Convention on Human Rights and Biomedicine.
Ethical issues
- Activities
- Reports & Publications
- Education materials
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List of national and international guidance on ethical aspects of genetic testing
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Genetic testing and counselling. European guidance.
Pascal Borry, Herman Nys, Tom Goffin, Kris Dierickx, European Ethical-Legal Papers N°3, Leuven, 2007.
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List of national and international guidance on ethical aspects of genetic testing
Legal Issues
Patient rights
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www.europatientrights.eu
- European Ethical-Legal Papers
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Schematic overview of relevant national
laws within the Member States on patients’
rights in general and genetic services in
particular
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Example Country Report
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Overview of ratifying countries
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Overview patients' rights laws charters and genetics legislation
- All publications on patient rights
News
More..."Gene Patents and Collaborative Licensing Models"-book now on the market
A book on patent pools, clearinghouses, open source models and liability regimes (upd.16 Jul 2009)
More...
New German law on genetic testing translated into English
The German Parliament has passed a new law on genetic testing. The law is likely to be promulgated and thus come into effect later this year. As a service to the scientific community we here provide an inofficial translation of the act. (upd.13 Jul 2009) More...
More news
Events
More...Mar 2005 - "Stakeholders and ethical aspects in the genetic testing process" - Pre-framing workshop (WP6.3)
Brussels (BE) More...May 2005 - Workshop Unit 4: 'TA of genetic testing and genetic counselling in Europe. State of the art'
Ethical aspects and governance of genetic testing services. What can we learn from the Technology Assessment approach and other recent studies in the field?Sevilla (ES) More...
Nov 2005 - Genetic Testing of Minors Workshop (WP6.3)
Leuven (BE) More...Sep 2006 - 2006 EACME Annual meeting - Conference New Pathways for European Bioethics (WP6.3 + WP6.4)
Leuven (BE) More...Jul 2007 - Conference of British Medical Association: Genetic testing of children: How should we decide? (WP6.3)
(GB) More...May 2009 - New Challenges for Biobanks. Ethics, Law and Governance
On 18, 19 and 20 May 2009 the E.U. funded research project GeneBanc holds the international conference in Leuven BelgiumLeuven (BE) More...
Last changed: 2011-03-21
