Ethics & Legal

Ethical issues (WP6.3)

• Activities
• Reports & Publications
• Education materials
  • List of national and international guidance on ethical aspects of genetic testing
  • Genetic testing and counselling. European guidance.
    Pascal Borry, Herman Nys, Tom Goffin, Kris Dierickx, European Ethical-Legal Papers N°3, Leuven, 2007.
• Meetings
• Members and contact info

Patient rights (WP6.4)

• Activities
• Publications
• European Ethical-Legal Papers
  Patient rights in the EU:
  • Czech Republic
  • Denmark
  • Estonia
  • Greece
  • Bulgaria
  • Cyprus
  • Hungary
  • Lithuania
  • Portugal
  • Slovakia
  • Spain
• Report
  • Schematic overview of relevant national laws within the Member States on patients’ rights in general and genetic services in particular
  • Country reports of the 13 EU Member States that have signed and ratified the Convention
  • Country reports of the 8 EU Member States that have signed, but not yet ratified the Convention
  • Country reports of the 6 EU Member States that have not signed, nor ratified the Convention (in preparation)
• Meetings
• Members and contact info

Events All events

06 Jul 2007 - Conference of British Medical Association: Genetic testing of children: How should we decide? (WP6.3)

28 Sep 2006 - 2006 EACME Annual meeting - Conference New Pathways for European Bioethics (WP6.3 + WP6.4)

24 Nov 2005 - Genetic Testing of Minors Workshop (WP6.3)

26 May 2005 - Workshop Unit 4: 'TA of genetic testing and genetic counselling in Europe. State of the art'

News

Patient Rights reports for Hungary, Lithuania and Slovakia

A new series on Patient Rights - including patient privacy, consent, antidiscrimination - are now available for Hungary, Lithuania and Slovakia (upd.04 Feb 2008) More...

Patient Rights reports for Cyprus and Bulgaria

A new series on Patient Rights - including patient privacy, consent, antidiscrimination - are now available for Bulgaria and Cyprus (upd.06 Nov 2007) More...