Event - International Workshop on Genetics, Medical Technologies and Health Policies

What

Organizers : European Genetics Foundation, The Johns Hopkins University SAIS Bologna Center and University of Bologna

DESCRIPTION

Advances in a number of fundamental fields of science and technology, including genetics, molecular and cell biology, information technology and material science have created a number of opportunities for the improved clinical care of patients. However, the radical and rapid advances in such a broad range of fields raise a number of challenges for society as well as ethical and public policy issues. Overall the workshop will compare and contrast issues raised by contemporary medical practices and genetic counseling with issues raised by new technological developments and genetic testing.

SPEAKERS

A. Alwan (Geneva, CH), J.J. Cassiman (Leuven, B E), S. Desiderio (Baltimore, USA), M. Federico (Modena, Italy), L. Garofano (Parma, IT), G. Gemelli (Bologna, IT), J.K.M. Gevers (Amsterdam, N L), R. Gillon (London, UK), H. Kääriäinen (Turku, FI), K.H. Keller (Bologna, IT), R. Lattanzi (Rome, IT), L. Luzzatto (Florence, IT), G. Matthijs (Leuven, BE), A. Casado da Rocha (San Sebastián, ES), S. Rodotà (Rome, IT), G. Romeo (Bologna, IT), A . Santosuosso (Milan, IT), G. Siegal (Kiryat Ono, I L), A. Sorensen (Zurich, CH), S . Woods (Newcastle Upon Tyne, UK)

SESSIONS & SPECIFIC TOPICS

Genetics & Society: Privacy issues, Managing Genetic Databases, Genetic database for security purpose, The Rockfeller Foundation and Global Health Policy
Genetic Testing & Counselling: The medical genetics lab and clinic, Quality management in genetic testing and in genetic counseling, BRCA1 patent in Europe (Round table discussion)
Use of Medical Information: Managing genetic samples and information, Information technology and themedical records, Medical information and the insurance/employment arenas, Post market medical device surveillance, Cancer Registries and their role in developing countries
The Translational Process: Institutional Review Board and Informed Consent, Genetics and malpractice/negligence, From research to applications in patient care, Africa and Global Health Transnational rules for scientific research
Bioethics: Ethical and legal framework in genetic research; Ethics, law and policy in Population Genomics, Biobanks - comparative ethico-legal analysis, Ethical issues and public understanding.

For further details, programme and registration please visit the "Courses" section of the EGF website www.eurogene.org